Holland Bloorview Kids Rehabilitation Hospital has become a member of KidSights, a data consortium established to solve and bridge the innovation gap in paediatric healthcare to improve the health and well-being of children and youth with complex requirements.
Paediatric healthcare has fallen behind the adult healthcare sector, particularly in paediatric disability care, partly due to the lack of large-scale datasets that drive advancements in care.
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KidSights aims to rectify this by creating de-identified, aggregated datasets using secure, privacy-enhanced technology.
These datasets can be accessed by innovators such as global medical device and pharmaceutical companies, as well as researchers to accelerate research and the development of new products, treatments, drugs and devices.
Holland Bloorview president and CEO Julia Hanigsberg said: “For far too long, paediatric disability health data have not been effectively aggregated and made widely accessible, which has led to a major innovation gap.
“The KidSights data consortium is a critical step in the right direction. By participating, Holland Bloorview expects to close that gap and speed up the development of personalised therapies and interventions to improve outcomes for children and youth with disabilities, developmental differences, and rare genetic conditions within and beyond our walls.”
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By GlobalDataHolland Bloorview is the first Canadian hospital to join the consortium, which was founded in 2023 by Gillette Children’s, a medical care provider for children with disabilities and complex health conditions.
Gillette Children’s president and CEO Barbara Joers said: “In our long history of providing speciality care for children with complex conditions and rare diseases, we’ve consistently led and innovated clinical advancements that directly benefit the community we serve.
“The launch of KidSights marks a transformative step forward in paediatric health. Gillette Children’s looks forward to utilising the data derived from KidSights to tackle enduring challenges and drive clinical advancements for the children who need them most.”
